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Touching the Hem of God - James Christensen
We all have our infirmities. When we reach out and have faith in Him, we can be healed. |
I asked a good friend who is a nurse practitioner if she would
suggest an ENT, I think it was for John and his tonsils. I decided I
would have him check my thyroid. He tested many things and confirmed my
Hashimotos. I had an ultrasound then a biopsy on a node found in the
ultrasound. It came back inconclusive.
Dr. Stock suggested I might have my thyroid removed and I said "NO WAY". This was the fall of 2011. I was not worried about cancer and the last thing I needed at the time was to be laid up with a surgery. He then cautiously asked if I've ever tried Armour. I said I hadn't and I was definetly interested. I started on 90 mg. A few months later, I went to my family doctor to have my blood tested and he raised my meds to 120 mg. I couldn't believe it. I felt better than I had in years. I knew this medicine was doing something that my synthroid hadn't been doing. I loved it.
Summer came and the youth in our ward walked from the Bountiful Temple to the Salt Lake Temple. Families in the ward met at the end and finished the walk to the Salt Lake Temple. Little John was exhausted. He couldn't stand anymore. He said how hard it had been and especially how hard it had been to see other youth with "problems" get in the truck for a ride. When we got in the car to go home, he instantly fell asleep and couldn't move the rest of the day. He wasn't well and had been really tired for a couple weeks. He had been suffering from migraines and we knew something wasn't right.
That night, John took him somewhere with him and while they were gone, I got down on my knees and prayed about him. A couple questions came to mind and I knew I needed to ask him. I couldn't wait for him to get home and when he walked in the door, I asked him if he feels depressed. He said he thinks so. I asked him if he thinks about death. He said "sometimes I think that would be easier". Ahhh. I KNEW he had thyroid problems and said told him we were going to the doctor on Monday.
Monday morning, I took him in, they tested him and the next day they called with the results that he has Hashimotos and low thyroid. They put him on meds and we feel like he has been doing so much better. In fact, about a month ago, his blood was tested and it was normal. I took him off the meds to see how he'd do and he got another migraine and said he feels better when he's taking medicine, so he's back on.
Just after this diagnosis, I went to the library and checked out every book I could find on the Hashimotos and Hypothyroid. I skimmed through all of them and became immersed in one of them. This book is written by a woman who has Hashimotos and Hypothyroid and writes first hand her experiences. I couldn't put the book down. From front to back, it was my life. I cried often. I took a lot of notes. I cried at the thought of my son having to deal with this the rest of his life (even though it shouldn't be too bad). It made me sad that he inherited it from me.
And for the first time in 22 years, since I was diagnosed, I KNEW so many of my issues and problems I have dealt with have been because of this chronic illness I have.
My mom happened to call when I was at the end of the book and I couldn't stop crying. We talked for about 45 minutes and I told her that I'm not as crazy as I thought I was and there is a reason behind all of the horrible moments in my life. (Some would have happened anyway, I believe). I was mad. I was mad at doctors who like to pretend they know everything. I was MAD that no one ever suggested Armour before. Mad that more could have been done but I was just told over and over and over and over and over......'everythings fine'. Everything wasn't fine. My numbers being right and the way I feel are two different things and I wanted meds changed based on how I felt. Not based on numbers. I contemplated becoming a thyroid doctor so patients could have someone who REALLY understands what they are going through.
When I took little John to the endocronologist in Salt Lake, he said, "he's not that bad. He probably doesn't even need medicine." I was not happy with him and he confirmed to me again that these doctors really can't make judgements when they haven't been through it themself or at least through a spouse.
I KNOW that the synthroid I had been on for 22 years was not the right medicine for me. I know that it was not helping my symptoms. I don't like that little John is on it right now but it's been suggested that he not take Armour yet.
But even with all of these new things I had learned and with all the tears and anger, I also felt comforted and knew that it all happened in the right time. I believe that maybe if I had taken Armour or done something different, it would have affected how many children I had or affected those children while I was pregnant with them. I don't know what the reasons are but I have felt very strong that all of the suffering I went through for so many years was the way it needed to be and Heavenly Father inspired me to make a change in my health in HIS time.
So, I continued tests, changed my medication, and continued on with life.
December came and I kept thinking I would be having surgery. I told Jolie and John that I don't know if it's real but I keep thinking it will be happening. So the week before Christmas, I called Dr. Stock's office. They squeezed me into an appointment they didn't have and we scheduled surgery for a few days later.....December 26th. He said it was 50/50 that I needed the surgery. I had a node that had taken over the right side of my thyroid and had been growing throughout the year and if I didn't do surgery, I would have a fine-needle biopsy and ultrasound once a year until it became necessary to have it removed. Having the surgery could help relieve the Hashimotos symptoms and the only con was that it's a surgery.
I prayed all week and it didn't feel bad so I went ahead with it. While in surgery, the node was tested for cancer. If it was cancer, they would remove the entire thyroid and I would stay over night at the hospital. If it wasn't cancer, they would only remove the right half of the thyroid and and I would go home that day.
As I was waking up after the surgery, my eyes were closed and I was in pain. I could hear the nurses talking and one said that I would be going home today. I knew this meant that it wasn't cancer and immediately the words came into my mind "this was the right thing to do". I felt peace and I knew that for some reason this WAS right. I don't know what might have happened or what will happen but the comfort at that moment was all I needed.
Isn't it awesome the way our prayers are answered?! I didn't have an 'answer' to prayer before the surgery, other than that it didn't feel wrong. Having a vital organ removed isn't something you can just go back on and change your mind about but AFTER the surgery is when I really had an answer to my prayers. The confirmation that I did do the right thing. Isn't that neat?!
Luckily John was able to take a few days off of work and stay home with the kids. I slept on the couch or in my bed for a few days. I was completely out of it. I have recollections of people coming or calling but no real memories of any of it. No one but family knew I was having the surgery so slowly neighbors were finding out. John's sisters paid to have a couple girls come clean my house for an hour and my aunt and mom and Jolie brought us dinners. So did my good neighbor, Holly. People still took care of us but John was amazing. He did it all. He played with the kids, fed the kids, and played the role of mom, dad, homemaker, nurse, cleaner, cook, and everything in between for several days. I am very grateful.
My doctor said they don't feel concerned about a thyroid unless it is over 3 mm. My right half was an inch. It was diagnoed as Hashimotos something and I'm glad it's out.
It's been a little over a month and it still feels swollen. I have a beautiful 2 inch scar across my neck. It looks like I've had a trach. My voice never works completely and mostly works very little. I can't sing and I can't yell. In the beginning I was actually praying that my voice would stay away until I learned new ways to discipline my children. I don't pray for that anymore but don't mind that it's still gone for that reason. :) It gets a little frustrating at times because it takes so much effort to use my voice. I miss singing in primary or at all and my children and husband have accused me of sounding ornery.
I went in last week and had my voice box looked at. One side isn't closing properly and he wants to see me back in a month. He said the longest he has seen a voice be gone is 6 months and it should come back because they tested it after the surgery and it was fine.
I feel pretty good. I'll have my blood tested next week to see how my levels are but I don't think they'll be much different. I'm anxious to find out. I keep pretty good track of my body and I've noticed things are a little out of wack so I'm interested to see if my body gets on a new cycle.
So, although I know I have had depression at times in my life and I come by it honestly through my genes, I have learned this year and KNOW that so many of my problems and hard times were because of my thyroid issues. YEAH!!!!
To sum it all up, it's not
just the medicine or the therapist. Its about taking the road to
finding what will help in whatever it is that needs help. For everyone it is something different. Most
important part is to NOT GIVE UP. Work continually in the little teeny
ways I can. Line upon line.
I'm not cured. Probably never will
be. But it's a daily decision I have to make. A decision I have to
make moment by moment as my day happens. What I choose to be my
reaction, matters. How I choose to let myself feel, matters. And there
are plenty of days when I lay around and do absolutely nothing. So be
it. I survived and my family survived.
I've had to find out what I could do to survive in each of the steps in my life.
I feel a lot better the last year. I believe life
circumstances have made a difference as well. Where we are in our
life. But I would never be able to have good days like I do now if I
didn't take the path of discovering me. What I need. What my body
needs. How to help myself. Zoloft at times in my life has
rescued me. Therapy rescued me at a critical time in my life. Friends and family have rescued me many times over, not even
knowing they have done so. It has happened with a random phone call .
Especially from my mom.
Somehow without knowing, my mom knew what I
needed. More than once. I've brought up some of these times to her and
she doesn't even remember them. I have been rescued by OTHERS need for
help. It's amazing what focusing on someone else for a while can do to
a soul. This is why I pray every day, when I remember, to be inspired
to things I can do for others or serve others. It works, by golly.
Church callings. Wow, there have been times when I just could not do it
but I did it anyway, and it rescued me. An invitation, connecting with
someone/anyone in desperate moments. They've come up and rescued me.
I've been blessed and I am very grateful and I am still learning. I Always will be.
LDS thought came on my email the other day and it went along perfectly with all of my own thoughts.
"Patience — the ability to put our desires on
hold for a time — is a precious and rare virtue. We want what we want, and
we want it now. Therefore, the very idea of patience may seem unpleasant
and, at times, bitter. Nevertheless, without patience, we cannot please
God; we cannot become perfect. Indeed, patience is a purifying process that
refines understanding, deepens happiness, focuses action, and offers hope
for peace."
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It's a path. A path that requires patience with ourselves and the knowledge that we will survive when we rely on and have unwavering faith in our Heavenly Father.
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